Title

Interview study about experiences with (medical) monitoring and imaging by children with lung diseases and their caregivers

Leading partner

Tilburg University

Work Package

WP4

Sites

Erasmus MC-Sophia Children’s Hospital, Rotterdam, the Netherlands

Population

30 children (15 girls and 15 boys) with CF, COPD and asthma, aged 8-18, together with their respective care givers.

Objectives

1. Get in-depth understanding of the role of (medical) monitoring and imaging in the lives of children with a lung disease and their caregivers
2. Get in-depth understanding of the meaning of (medical) monitoring and imagining for children and their care givers, with special attention to associated difficulties and risks
3. Get in-depth understanding of experiences of the study protocol, CT, spirometry and 3D MR spirometry
4. Explore how children manage and monitor their lung disease in their daily lives
5. Explore how (medical) monitoring and imaging informs the sense-making practices of children and their caregivers
6.  

Procedure

Participants will be recruited within the context of the ADVANCER study that is carried out at Erasmus MC-Sophia. Participants in this study will undergo CT, spirometry and 3D MR spirometry on a single day. After this day, participants will be contacted by the researcher to schedule an interview, which can take place online or on-site. The interview itself will last approx. one hour and will be recorded, transcribed and thematically analyzed in the data analysis software Maxqda. Content-wise the interview will explore how children and their caregivers experienced their participation in the ADVANCER study, and will zoom into their experiences with (medical) monitoring and imaging more generally.